By By (author) Icon Health Publications
ISBN-10: 058549097X
ISBN-13: 9780585490977
ISBN-10: 0597836752
ISBN-13: 9780597836756
This booklet has been created for folks who've made up our minds to make schooling and study an essential component of the therapy technique. even though it additionally supplies details valuable to medical professionals, caregivers and different overall healthiness execs, it tells mom and dad the place and the way to appear for info protecting nearly all issues with regards to craniosynostosis (also untimely closure of sutures), from the necessities to the main complicated parts of study. The name of this booklet comprises the be aware legit. This displays the truth that the sourcebook attracts from public, educational, executive, and peer-reviewed examine. chosen readings from a variety of organisations are reproduced to offer you many of the most recent reputable info on hand so far on craniosynostosis. Given mom and dad' expanding sophistication in utilizing the web, considerable references to trustworthy Internet-based assets are supplied all through this sourcebook. the place attainable, advice is supplied on tips to receive free-of-charge, fundamental study effects in addition to extra special details through the web. booklet and digital types of this sourcebook are absolutely interactive with all of the websites pointed out (clicking on a link immediately opens your browser to the location indicated). Hard-copy clients of this sourcebook can kind brought up net addresses without delay into their browsers to acquire entry to the corresponding websites. as well as broad references obtainable through the web, chapters contain glossaries of technical or unusual phrases.
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Additional resources for The Official Parent's Sourcebook on Craniosynostosis: Updated Directory for the Internet Age
Example text
By consulting all of associations listed in this chapter, you will have nearly exhausted all sources for patient associations concerned with craniosynostosis. The National Health Information Center (NHIC) The National Health Information Center (NHIC) offers a free referral service to help people find organizations that provide information about craniosynostosis. gov/NHIC/ or contact an information specialist by calling 1-800-336-4797. DIRLINE A comprehensive source of information on associations is the DIRLINE database maintained by the National Library of Medicine.
To use this service, go to While board certification is a good measure of a doctor’s knowledge, it is possible to receive quality care from doctors who are not board certified. com/, select “Find a Neurologist” from the toolbar. ” To find out more information on a particular neurologist, click on the physician’s name. org/. NORD maintains a database of doctors with expertise in various rare diseases. The Metabolic Information Network (MIN), 800-945-2188, also maintains a database of physicians with expertise in various metabolic diseases.
The ultimate goal of this study is to provide a biological basis for future cytokine therapy protocols designed to manipulate postoperative suturectomy site reossification, decrease intracranial pressure, and ameliorate craniofacial growth deformities in human infants with familial, non-syndromic craniosynostosis. ; ; Johns Hopkins University 3400 N Charles St Baltimore, Md 21218 Timing: Fiscal Year 2000 Summary: The long term goals of this project are to generate and characterize mouse models of human craniofacial disease syndromes, and to understand the genetic and biochemical pathways underlying these disease syndromes.
The Official Parent's Sourcebook on Craniosynostosis: Updated Directory for the Internet Age by By (author) Icon Health Publications
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